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Ohio's 91-Layer Disability System
If you are new to Ohio’s developmental disabilities (DD) waiver system, it can feel like you’ve stepped into a world where everyone speaks in acronyms and no one quite seems to be in charge. Families are told to call one office, only to be redirected to another. Questions get tossed back and forth with phrases like “that’s the state’s policy” or “that’s up to the county.” It is a confusing system, and confusion has consequences. The more confusing a system is, the easier it b

End Ohio's Parent Penalty
10 hours ago4 min read


ACTION: Tell DODD — No Background Check, No Job
Copy and send our suggested comment (or write your own) by December 18th in time for the hearing on December 19th. If you don't speak up, who will?

End Ohio's Parent Penalty
Dec 12, 20253 min read


Did Acting Director Nash Sign a Contract with a Major Error?
Will children be required to take a highly personal psychiatric test, or did Director Nash just sign a major research contract that contains a serious mistake?

End Ohio's Parent Penalty
Nov 26, 20252 min read


What Families Need to Know About the New interRAI Test
Here's a copy of the contract between DODD and interRAI. The test is A LOT more invasive and personal than the ODDP, you aren't allowed to have a copy, and your data will be used for research.

End Ohio's Parent Penalty
Nov 24, 20254 min read


Action Alert: Tell DODD "NO" to Surprise Home Visits
DODD wants to make a new rule that SSAs can barge into your house whenever they have a "concern." Send your public comment opposing this terrible idea by November 17th.

End Ohio's Parent Penalty
Nov 14, 20254 min read


Does DODD’s Switch to the interRAI Test Violate the Ohio Disability Bill of Rights?
DODD's new test will require all 43,922 Ohioans receiving IO, SELF, or Level 1 waivers to become human subjects in interRAI’s research database. Removing your name from your data doesn't mean you weren't forced to participate in interRAI's research in exchange for Medicaid benefits.

End Ohio's Parent Penalty
Nov 12, 20253 min read


DODD Quietly Announces Mandatory Home Inspections for All Waiver Recipients
DODD dropped the news that the new interRAI test will include a home inspection for all Level 1, IO, and SELF waiver recipients in Ohio. Here's why families need to be concerned.

End Ohio's Parent Penalty
Oct 29, 20254 min read


1-Minute Action: Send Public Comments on Level 1, IO, and SELF Waivers
Send your comment on Ohio's Level 1, IO, and SELF waivers - it only takes one minute! Due by September 27, 2025.

End Ohio's Parent Penalty
Sep 24, 20253 min read


Do County Boards Have to Replace Parent Caregivers Every Year?
Here's how to find out whether your county board still plans to replace you after DODD admitted there is no such requirement in the law... and what you could do about it.

End Ohio's Parent Penalty
Sep 23, 20254 min read


Big Change in Ohio: Legal Guardians Do Not Need Court Permission to Be DSPs
Legal guardians no longer need to ask for probate court permission to serve as direct care workers.

End Ohio's Parent Penalty
Sep 18, 20252 min read
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