A Pennsylvania court just ruled that "guidance" is not a law when it comes to disability services and family caregivers.

If your county board of developmental disabilities has told you they need to search for someone to replace you as your disabled child's Medicaid waiver caregiver, you may have been told this is required by law. You may have been told your child's services will be affected if you refuse. What you may not have been told is that the state agency responsible for overseeing county boards already told the Supreme Court of Ohio that these searches are not legally required. What Is

Here's how you can make sure your voice is heard when the state writes a new rule.

If you are new to Ohio’s developmental disabilities (DD) waiver system, it can feel like you’ve stepped into a world where everyone speaks in acronyms and no one quite seems to be in charge. Families are told to call one office, only to be redirected to another. Questions get tossed back and forth with phrases like “that’s the state’s policy” or “that’s up to the county.” It is a confusing system, and confusion has consequences. The more confusing a system is, the easier it b