If you are new to Ohio’s developmental disabilities (DD) waiver system, it can feel like you’ve stepped into a world where everyone speaks in acronyms and no one quite seems to be in charge. Families are told to call one office, only to be redirected to another. Questions get tossed back and forth with phrases like “that’s the state’s policy” or “that’s up to the county.” It is a confusing system, and confusion has consequences. The more confusing a system is, the easier it b

Copy and send our suggested comment (or write your own) by December 18th in time for the hearing on December 19th. If you don't speak up, who will?

Will children be required to take a highly personal psychiatric test, or did Director Nash just sign a major research contract that contains a serious mistake?

Here's a copy of the contract between DODD and interRAI. The test is A LOT more invasive and personal than the ODDP, you aren't allowed to have a copy, and your data will be used for research.

DODD wants to make a new rule that SSAs can barge into your house whenever they have a "concern." Send your public comment opposing this terrible idea by November 17th.

DODD's new test will require all 43,922 Ohioans receiving IO, SELF, or Level 1 waivers to become human subjects in interRAI’s research database. Removing your name from your data doesn't mean you weren't forced to participate in interRAI's research in exchange for Medicaid benefits.

DODD dropped the news that the new interRAI test will include a home inspection for all Level 1, IO, and SELF waiver recipients in Ohio. Here's why families need to be concerned.

Send your comment on Ohio's Level 1, IO, and SELF waivers - it only takes one minute! Due by September 27, 2025.

Here's how to find out whether your county board still plans to replace you after DODD admitted there is no such requirement in the law... and what you could do about it.

Legal guardians no longer need to ask for probate court permission to serve as direct care workers.

DODD's rule protects predators and puts Ohio's most vulnerable children and adults in grave danger. Comment by September 5th to help protect vulnerable Ohioans. It only takes one minute to participate.

What might happen if Ohio changes to acuity-based provider pay?

Good riddance to the ODDP! Is the Ohio Parent Penalty finally going away?

The federal budget bill contains new options and responsibilities for states wanting to expand Medicaid HCBS waivers. What does it mean for you?

Around 11 million people nationwide are projected to lose their Medicaid coverage under the “One Big Beautiful Bill"over the next nine years, mostly adults without disabilities who gained coverage through Medicaid expansion. About 59 million people are projected to keep their Medicaid. Telling people with intellectual disabilities that they are the target for these cuts is misleading and manipulative.

Ohio’s new budget quietly added a last-minute audit of Medicaid for the Aged, Blind & Disabled group. The state will look for people with over $2K in assets and create an asset-check system. Adults on DD waivers may be affected. Families had no chance to testify. Check that your loved one’s assets are protected now.

The Supreme Court of Ohio dismissed our home inspection case, but the Ohio General Assembly has added new required SSA training to the budget bill.

Here's a quick look at the Ohio Senate's plan for a potential DODD system overhaul.

Amid controversy and multiple lawsuits, Director Hauck announced she is retiring from her role as DODD Director in late June of 2025.

Here's why it's smart to avoid saying the three most dangerous words: "I was told."