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What Do Waivers Waive?
Medicaid waivers promise home care instead of institutions, but bans on family caregivers turn that promise into an unpaid burden on familie
Dec 13, 20243 min read


Ohio's Never Alone Act: A Triumph for Vulnerable Citizens
The Never Alone Act is a major step forward in protecting the rights and dignity of vulnerable Ohioans.
Dec 12, 20242 min read


Montgomery County Board of DD Defends Controversial Anti-Family Caregiver Lobbying Effort
Montgomery County Board of DD Communications Director claims OACB's anti-family caregiver lobbying letter did not try to ban parents.
Dec 4, 20244 min read


Breaking the Cycle: How Legacy Resentment and Blood Blame Harm Families in the Disability Community
Generational resentment threatens services for individuals of ALL ages.
Dec 3, 20243 min read


Celebrating Accountability: Combs Resigns!
Anti-family caregiver letter-signer Pamela Combs has finally resigned!
Nov 29, 20242 min read


Ohio Department of Developmental Disabilities Threatens Safety of Individuals with Profound Disabilities by Targeting Enclosed Beds
DODD wants to label medically necessary safety beds as "mechanical restraints;
county boards say individuals live too long.
Nov 26, 20243 min read


Block Grants for Medicaid: A Threat to HCBS Waivers and Family Caregivers
There's a lot of buzz this week about block grants. What would this mean for Medicaid HCBS waivers?
Nov 24, 20243 min read


A Milestone in Advocacy: The American Academy of Pediatrics Endorses Paid Family Caregivers for Children with Disabilities
Breaking News: The American Academy of Pediatrics Supports Paid Parent Caregivers.
Nov 21, 20243 min read


You Have What It Takes: Fighting for Your Child’s Needs
Your child fights daily to overcome challenges in a world not built for them. You have the strength to fight for their rights—and you must.
Nov 19, 20242 min read


Send Comments About Guardianship - Deadline 11/18/24
Send your guardianship comments by November 18, 2024.
Nov 16, 20244 min read


Bill to Watch: SB 296 ABLE Account Estate Recovery
Senator Brenner's SB 296 seeks to end Medicaid estate recovery from ABLE accounts - a great idea that will help Ohio families!
Nov 15, 20242 min read


New Report Examines Conflicts of Interest at The Arc of Ohio: Can They Truly Advocate for Ohioans with Developmental Disabilities?
New Report: Does The Arc of Ohio's multi-million dollar Medicaid provider business interfere with its advocacy efforts?
Nov 14, 20243 min read


Empowering Family Caregivers: Why We Need Policy Change Now
Sign the petition - help us convince the new administration that we need paid family caregivers.
Nov 11, 20244 min read


NEWS: Ohio to Propose Replacing “Suspicious Death” Label with “Unanticipated Death” - 11/08/2024
A recently leaked draft of OAC 5123-17-02 from DODD’s MUI workgroup reveals a concerning change in the way deaths of people with...
Nov 8, 20241 min read


Your Service Coordinator is Not Your Buddy
Long-time family caregivers recommend keeping relationships with service coordinators professional, not personal.
Nov 8, 20243 min read


Ohio’s Parent Caregiver Crisis: How New DODD Guidance is Harming Vulnerable Families
Ohio's attempt to replace parent caregivers with strangers every 4-6 months never even went through the official rulemaking process.
Nov 6, 20243 min read


Send a Letter to JMOC about EVV - 11/5/24
ODM is surveilling thousands of Ohioans who should be exempt. Can JMOC help us?
Nov 5, 20242 min read


"Greedy," "Lazy," & "Mental"
County board employees called family caregivers "greedy," "lazy," "mental," and other slurs at a 2024 conference.
Nov 4, 20242 min read


How Does the Ohio Developmental Disabilities Profile Work?
Your answers to the ODDP test set your funding for the Individual Options waiver.
Nov 4, 20241 min read
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